mHealth paper

This work presents a personalised SCD management tool for assessing patient (pain, medication adherence, overall quality of life) and research (quality, quantity, and precision of registry data) outcomes in Africa. The piloting phase addressed the following questions followed by adapting the design based on feedback accordingly: (1) What components from existing SCD management mHealth tools might be beneficial to add to our prototype design? (2) How do SickleInAfrica SCD patient representatives, healthcare providers, and researchers perceive the usability of the prototype and what requirements do they suggest? An iterative
user/stakeholder-centred approach was used to develop an mHealth and dashboard app inaccordance with the Centre for eHealth Research (CeHRes) Roadmap.